The Wisconsin Registry for Alzheimer’s Prevention (WRAP) is beginning a new study called the Amyloid Disclosure Study to examine how people respond to learning their amyloid PET scan results.
The study will consist of:
- Three 1.5 hour in-person/virtual visits
- Informed consent and education session
- Education session and disclosure of the beta-amyloid PET scan result
- Personalized lifestyle counseling session with a study clinician
- Three brief phone visits (30 minutes)
(click timeline to view full-screen version)
Goal: Develop an infrastructure to support a responsible approach to Alzheimer’s disease biomarker disclosure.
Goal: Investigate personal impacts of amyloid disclosure.
Who Is Eligible?
Eligible participants for this study are those that have completed or can complete an amyloid PET scan in WRAP (or PREDICT) and are 65 or older. Today, using amyloid PET brain scans, researchers and doctors can see where and how much amyloid is present in a person’s brain. The Wisconsin Registry for Alzheimer’s Prevention (WRAP) is using brain scans to understand the role of amyloid in Alzheimer’s disease.
Amyloid is a protein produced normally in the brain, but in people with Alzheimer’s disease it accumulates abnormally causing plaques that interfere with brain cell (neuron) communication. Amyloid plaques are not normal and are always found in the brains of patients with dementia due to Alzheimer’s disease. This buildup of amyloid begins many years, perhaps decades, before symptoms of memory loss appear.
Meet Our Study Team
Position title: Study Clinician
600 Highland Avenue
Madison, WI 53792